Lu's News

I can't believe we are at the end of 2016 already, it's gone so fast but at least it gives me a chance to write a blog based on this years happenings. It doesn't seem like 5 minutes since I first started blogging back in june! Taking up Blogging doesn't sound like a big deal, but for me it's been the best thing about my year. By joining Blogger I gained a voice, and I gained the courage to speak up about things that trouble me. Initially I wasn't doing it because I wanted people to read, I was just doing it to give myself something else to focus on other than my worries. But as time went by I slowly built up a strong readership of people who can relate to the things I blog about, people who suffer with similar problems as me, and more importantly, people who fully understand my words, all of that has given me more motivation than ever to keep Blogging, even though I only do it as a hobby, it has made me feel like there's more of a proper purpose to it. I

This is just going to be a very quick post because I have already done this one, but stupidly & accidently I pressed revert on my blogger account & it messed the whole blog up, so when people was clicking the link, nothing was coming up. I wasn't going to bother doing it again because I can't remember exactly what I wrote lol, but I'm going to give it a try. Some of might've read it before I messed it up, if you did, you won't want to read it again, but I'm just posting it for anyone who might not have had chance to see it before I managed to loose the whole thing! At least it's taught me to be extra careful in future! I'll try to say everything that I said in my original post, but I'll aim to make it shorter. I can't promise that though, as you all know what I'm like once my fingers get going on this keyboard, they don't know when to stop!.. Here goes..  I just wanted to say a really big thankyou to everyone who read, commented

Today I bit the bullet and had my hair chopped into a very short pixie crop with a heavy fringe. It's something I have been thinking of doing for a while now, I had a similar style a couple of years ago but I'd let it grow since then. It's only when my hair starts to grow though that I realise how much having longer hair affects my back. Washing it becomes difficult due to the rods in my spine because I cant bend, so I've had to comprimise lately but that has been putting too much pressure on my screws, making them pop in & out, as well as bringing on terrible pains around my metal work. It was that which led to my desicion to go for the chop.Well that, and the fact that I like to have a bit of difference about me, there's nothing I hate more than fitting in with the crowd, I love to stand out & I can't do that if every other person I look at has the same, or a similar hairstyle as me. So now I've cleared that one up, lol, I'll get to the main po

An example of how bendy my bones/joints are due to Hypermobility/Marfan At the end of my Marfan blog I mentioned Hypermobility Syndrome but I didn't go into detail about that so I thought I'd do that this time. Hypermobility is something I am hugely affected by & in my case it's called Secondary Hypermobility Syndrome, which means it's a symptom of something else. Lots of people are hypermobile, meaning their joints are more flexible than they should be, but it doesn't cause them any trouble & they aren't affected by any additional issues, so for them it's just called "being hypermobile" and there is nothing else to it. Hypermobility, or hypermobility Syndrome is what they call it when more severe symptoms are involved, such as pain & other things, which then means it could be part of something more serious & rare, and that's the case for me as I have Marfan syndrome. Since I was a child I have suffered from bad joints but I